Pain in muscles and joints?
In the Newspaper 16. may is our views set in a context which may have confused more readers. Let it be clear, Norway’s ME-association is of course not opposed to research on ME. We are also not opposed to research on the Lightning Process (LP) if it can be insured that the patient’s disease is not worsened (something we strongly doubt can be done), but that of health Bjørn Guldvog have said, then should not the public grants used to fund research for private commercial interests.
A study on the LP offers challenges when it comes to ethics. LP is a “process” where patients are told that they do not have the disease, they “make the disease”, and that by performing rituals every time they know the symptoms or take itself in “pathogens behavior” can choose to live “the life they love” rather than falling into the “ditch”. the
WE-ill stop the research
People who have gone on the course tells us that they get to hear that one must believe for it to work, and that you have done the process wrong about you not being fresh. According to Nafkams assessment act LP to suppress symptoms, and are classified as a alternative treatment.
The most important ethical reason that WE-the association is skeptical about this therapy-the project is, however, that the LP course has made the disease worse for many ME patients. Therefore, it is ethically necessary to distinguish between the ME patients and chronic utmattete patients before the study. So requires, as is well known law of health that patients must give their information-based consent before a treatment starts. ME patients must know that many ME patients have klagd treatment to the NAFKAM and the user surveys indicate that some patients are worse.
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ME association travel at the same time two questions about Ntnu’s academic quality standards. It is methodically justifiable to allow a commercial licensee even participate as an instructor? Instead of a randomized placebo-control group, is planning the study to postpone a few months for half of the patients. Call this a placebo group at NTNU?
Norges ME-forening want in other words, research on the ME or chronic fatigue welcome, but then it must be set clear requirements for ethics and quality. And why is it that we are so skeptical of this study.
Commercial research must be funded without public support, the treatment must not make the patients worse and the good method must be ensured.
Scares ME-sick
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